12. Deputy Peter 'Chap' Cleere asked the Taoiseach when the Cabinet committee on health will next meet [48149/26]

Sentiment score: 0.00

For people living with Friedreich's ataxia time is something they simply do not have. Every delay means more mobility lost, more speech lost and more independence taken away. Families such as Emily Felix and her family in Kilkenny, Oisín Pollard and his family in Carlow and many others have campaigned with huge dignity and courage for access to Skyclarys, the first treatment approved for this condition but unfortunately they continue to face delay and uncertainty while the disease continues to progress. Will the Taoiseach update the House on what the Government's position is on reimbursing Skyclarys? What message does he have for the young people and families who feel they are being asked to wait while an irreversible disease takes more and more from them every day?

Sentiment score: -0.19