John Clendennen

Overall sentiment: 0.46
Back to Debate

I would like an update on the extent to which parents or next-of-kin of adult children with a disability are consulted on future care and the provision they receive.

Sentiment score: 0.69

I thank the Minister of State. The future and provision of care as to how a parent's or guardian's loved ones will be looked after, particularly after they have passed, is something that keeps people up at night. The appointment of decision-making capacity and assistance with it is important, but there needs to be an element of understanding that the next of kin, where there is one, is given the opportunity to assist in that regard. What we do in the present will give a sense of confidence as to what will happen in the future. One issue that has been raised with me frequently in recent times is the wait times for assessment and delays in applications for people who are already in a healthcare setting, particularly where someone is in a residential care setting for the elderly, but may be of a younger age and may not need a facility to that extent, and are not stimulated or motivated by it. We need to ensure that we are giving confidence to loved ones within families in that regard to ensure their more vulnerable family members are being adequately looked after.

Sentiment score: 0.45

I acknowledge the efforts the Minister of State has made in this area. I recently met with the Muiríosa Foundation. The work it does in this space is commendable and is very welcome in terms of the initiatives it is bringing forward, particularly to encourage individuals with a disability into the workplace, into education and into different services. There is an element of needing to ensure there is an adequate service there to meet that level of dependency. Local employers are providing a couple of hours of work a day to get people out of the house and give them a sense of routine. It is rewarding for more than just the individual who is receiving that opportunity to get into the workplace. We need to see more initiatives such as that. Everything we do in this space today will reassure those family members about the days in the future when they may not necessarily be around to look after them. I acknowledge the work the Minister of State has done, but the timeframe for assessment, such as psychiatric reports from doctors or otherwise, needs to be done in a timely manner. We need to continue to work on the services that we are providing.

Sentiment score: 0.24