I have raised this multiple times over the past few months. I welcome that the Minister of Health has signed off on the end-to-end review for funding of new drugs in Ireland but we have said on many occasions that for children suffering from Duchenne muscular dystrophy, DMD, time is muscle and children with DMD face a blatant inequality under the current system. I am sure the Taoiseach will be aware of two boys in Donegal. Diarmuid O’Sullivan has DMD, as does has his brother. His brother is on a trial and has access to the medicine, but Diarmuid does not. Aaron Langan lives in Laghey, ten minutes from Belleek, County Fermanagh, where the drug is readily available. Can the Taoiseach give us a timeline on the review of Ireland's approval system for drugs such as givinostat? The families cannot wait. We need to make sure we get on this now.

Sentiment score: 0.07