I raise the issue of givinostat. I know it has been raised repeatedly but there was a packed audiovisual room briefing. There was welcome news on it yesterday. This is givinostat for Duchenne muscular dystrophy. It was recommended for reimbursement by the HSE drugs group and it is with the senior leadership team now. There are two specific asks I wish to raise with the Minister. First, this process must happen speedily. These children still do not have access to this drug, and they need access to it. Every day counts. The second ask is an important one. When it is recommended and reimbursed, it must be consistent with the National Institute for Health and Care Excellence, NICE, guidelines in Britain so that everyone who can stand or walk, with or without support, is included in the scheme. That is an important point. I would appreciate it if the Minister would bring that back.

Sentiment score: 0.21