The Taoiseach has answered a question on this already. Perhaps he would give us a timeline. Will he urgently intervene to ensure that the drug, Skyclarys, is included in the HSE's drugs group agenda for tomorrow, 10 June? I raised this issue in the Dáil a number of months ago. I have also written directly to the Minister for health about it, yet here we are again with no progress and families left in limbo. I am speaking on behalf of Emma O'Shea from Bantry who was first diagnosed at ten years of age, and others who are living with Friedreich's ataxia, a cruel and relentlessly progressive disease where every single month lost means a permanent loss of mobility and quality of life. Skyclarys is the first treatment proven to slow the condition. It is already approved and being provided in countries across Europe and the United States, yet Ireland's patients are once again left behind because of delays in the system. Will the Taoiseach intervene today with the Minister and the HSE to ensure Skyclarys is considered immediately? Does he accept that families cannot continue to wait while time and their health slip away because of bureaucracy?

Sentiment score: 0.12