People living with Friedreich's ataxia are once again outside the gates of the Dáil. They are, as the Taoiseach knows, waiting and waiting for confirmation that they will have access to Skyclarys, a drug that has the potential to be life-transforming for them. In the absence of it, however, far too many of them see disimprovement in their physical experience, and their symptoms and conditions are accelerating. We have a number of them in the Public Gallery. I acknowledge David, Oisín, Emma, Cherie, Joe, Erica and Isabella. Emily Felix, whose specific case I raised with the Taoiseach a couple of weeks ago, is outside, at the gates. We need a decision from the HSE on access to this drug. I raised it with the Taoiseach last month. It was not on the HSE committee agenda. We need it to be on the agenda-----

Sentiment score: 0.01

-----and we need a positive decision for these people before we rise for the summer.

Sentiment score: 0.56

They are waiting two years.

Sentiment score: 0.00

It is 700 days.

Sentiment score: 0.00