Most days, the Taoiseach and I fight and argue about policy and politics. Today, is not one of those days. I come in here today to speak on behalf of Craig Coady. He had a family, a wife and two sons. His wife now is in long-term hospitalisation. She has Huntington's disease. They buried their 13-year-old son Rory, who died as a result of Friedreich's ataxia. Their second son Paudie, who is 15 years old, is dying of the same disease. Skyclarys is not a perfect medicine. It is not a cure, but it has been shown repeatedly to have clinical benefits in slowing the disease. I am asking that under the compassionate access programme, as happens in France, this drug be provided to Paudie.
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Can I just say this?
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I spoke to-----
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I spoke to Craig this morning. He is pleading from his heart that the Taoiseach and the Minister for Health see to it that this drug is provided.
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