In my constituency a family have already buried one child due to Friedreich's ataxia and their second child is now in a wheelchair due to the same disease, which is advancing. A treatment called SkyClarys is clinically approved and has been shown to slow the progress and the State refuses to reimburse it. Let me be clear: this is not about science or availability; this is about a decision not to fund. What does the Taoiseach say to parents watching their child's disease progress in real time while a treatment exists but is withheld? I want to ask him a direct question. Will he instruct the Minister for Health to fast-track a reimbursement decision for SkyClarys and define the timeframe? Yes or no.

Sentiment score: 0.21