I thank the Minister of State for making himself available to deal with this matter. March, this month, is endometriosis awareness month. I am raising this issue to highlight a drug to which I will refer in this matter, namely, Ryeqo. It is available in over 27 countries across Europe. While it is available to purchase in Ireland, it is not available under the general medical services, GMS, scheme. In October 2025, the Minister for Health launched a national framework for the management of endometriosis in Ireland. The HSE, together with the Department of Health, has established a number of centres around the country, including in Tallaght University Hospital, Cork University Hospital, the Rotunda Hospital, the Coombe hospital, University Hospital Limerick, Galway University Hospital and the National Maternity Hospital. We have developed all of these centres to provide care for women. It is estimated that one in ten women will be affected by endometriosis. I know of the case of a 20-year-old girl who has undergone surgery. Two different consultants have recommended that she use the drug Ryeqo but she cannot afford it because it is not available to her under the GMS scheme. She is 20 years of age. She has gone through the surgery and the drug is not available. In 2022, the drug was submitted for approval under the drugs payment scheme, but it was turned down on the basis that it would not be economical to have it in the GMS scheme. I would argue with that. A huge number of women require care. It is not just surgical care. They also require the use of medication. This particular medication is not available but is being recommended by consultants. If you are lucky enough to have the income, you can purchase it, but if you do not, you are in difficulty, and in many cases there is no alternative. I ask for this matter to be reconsidered and given the priority it deserves. I fully understand that each year, there is a budget for the purchase of pharmaceuticals and drugs. However, 27 countries across Europe have this drug available under their health schemes but it is not available here in Ireland. In October 2025, the Minister set out a clear timeline to try to make all care available to women who had this medical condition. We have developed the surgical approach. For instance, we now have specialist units in Cork and Tallaght to deal with the condition, and other units are providing care across the country. It is wrong that we are able to provide surgical care now but are not prepared to provide the medication that is required either before the person is identified as requiring surgery or after surgery is completed. I ask that the matter be reviewed. We should go back into the negotiating process so that an agreement can be reached to have this drug made available. I ask for that to be done at the earliest possible date.
Sentiment score: 0.10
I thank the Minister of State. My information is that it was in February 2022 that the NCPE concluded that there was insufficient evidence of cost-effectiveness for the drug to be approved for reimbursement by the Health Service Executive. Obviously, there is a new application in. The Department of Health has taken decisions previously where the NCPE turned down a particular drug because of its cost-effectiveness, but it is about far more than just cost-effectiveness. There is also the issue of patient care. Sometimes when we look at cost-effectiveness, we look at the immediate cost of the drug rather than the long-term benefit. If having a drug available means we will reduce the number of times a person has to go to their general practitioner or consultant or to hospital, then that is a cost saving in real terms. All the evidence that has been presented to me clearly indicates that if this drug was made available, it would be beneficial to women who have this medical condition. The example I gave is a true and accurate one of a 20-year old who has no other drug available except ordinary painkillers, which are not really adequate for the difficulty she has. She has gone through surgery. This is the recommendation of two consultants but she cannot get access to this drug. This is a time when we need to be really pragmatic about taking a decision on something. Sometimes an issue may cost more than what it seems on paper, but in real terms there is a real saving for the State.
Sentiment score: 0.16
I thank the Minister of State.
Sentiment score: 0.36