I raise an issue relating to rare diseases. The Leas-Cheann Comhairle and I recently attended a meeting with sufferers of Friedreich's ataxia. The Tánaiste will be aware of the quest by people with Duchenne muscular dystrophy to have givinostat approved. I do not expect him to comment on that because it is subject to negotiation at the moment but the same thing is happening with a different cohort of patients. Some have come to this building to attend audiovisual room briefings and so on, all in the hope that they can access some rare clinical trial or rare medicine. That will keep on happening in perpetuity unless the system actually adjusts and changes. An early access scheme was mooted in the programme for Government. Has that work commenced and, if so, where are we at with it? Before long, we will be halfway through this term. If we do not get on with that job of work, we will be facing into the next election with nothing done.

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